Yep, that’s me, Electrode Gal. Here’s what’s happening lately:
— Oct. 21: The neurosurgeon and his surgical team implanted two electrodes (one for each side) in my brain. Operation took 3 hours. Yes, the rumor is true – they really do wake you up in the middle of the operation to ask some questions. They reported my only response was “Ow!” Mercifully, I don’t remember a thing. I never realized the importance of the anesthesiologist in an operation.
–Oct. 28: The second procedure was to make a little flesh pocket in my .chest area, and place an electronic controller in it. You direct the controller by a Blue Tooth remote control. Again, I didn’t remember a thing. (Thank God.) But still, nothing was turned on.
–Nov. 10: At long last, it was time to turn the joy juice on! I’d be able to straighten up and walk normally – Yay! I tried to picture/ hear/ feel what this would be like — A big cloud of blue smoke?
A whine like an old fluorescent light fixture? A tremor through the complicated wiring?
Nope. I got nada, nothing.
I was instructed to gradually juice up the amplitude, which I did for several days with hope every morning that some thing would improve.
Nope. I got nada, nothing.
Actually, two things changed — Dyskinesia (Bozo doll bouncing) was longer and more violent, and my right hand tremored (normally very rare for me.
In frustration, I sent an email to my doctor asking what should I expect? He responded:
“It is far too soon to draw any conclusions about DBS. The effects on your Pisa syndrome are going to be very gradual over months..”
Oh. I guess this is the fine print.. My success with DBS is TBD. Stay tuned
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I’ve been wondering about you. I’ve been cautiously optimistic. Sorry you are still leaning. I guess “gradual” can be G-R-A-D-U-A-L??? Thank you for the update.
Karen VanWyngarden
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