The Continuing Adventures Of ***Electrode Gal***

Yep, that’s me, Electrode Gal. Here’s what’s happening lately:

— Oct. 21: The neurosurgeon and his surgical team implanted two electrodes (one for each side) in my brain. Operation took 3 hours. Yes, the rumor is true – they really do wake you up in the middle of the operation to ask some questions. They reported my only response was “Ow!” Mercifully, I don’t remember a thing. I never realized the importance of the anesthesiologist in an operation.

Superheroines even get to have bad hair days.

–Oct. 28: The second procedure was to make a little flesh pocket in my .chest area, and place an electronic controller in it. You direct the controller by a Blue Tooth remote control. Again, I didn’t remember a thing. (Thank God.) But still, nothing was turned on.

–Nov. 10: At long last, it was time to turn the joy juice on! I’d be able to straighten up and walk normally – Yay! I tried to picture/ hear/ feel what this would be like — A big cloud of blue smoke?
A whine like an old fluorescent light fixture? A tremor through the complicated wiring?

Nope. I got nada, nothing.

I was instructed to gradually juice up the amplitude, which I did for several days with hope every morning that some thing would improve.

Nope. I got nada, nothing.

Actually, two things changed — Dyskinesia (Bozo doll bouncing) was longer and more violent, and my right hand tremored (normally very rare for me.

In frustration, I sent an email to my doctor asking what should I expect? He responded:

“It is far too soon to draw any conclusions about DBS. The effects on your Pisa syndrome are going to be very gradual over months..”

Oh. I guess this is the fine print.. My success with DBS is TBD. Stay tuned

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About Laura Kennedy Gould

Laura woke up one morning in June 2012 and "as if by magic", her right hand was tremoring. Diagnosis: Parkinson's. Laura writes about Parkinson's research, Parkinson's people, and her own journey in her blog: "The Magic Trick -- Life with Parkinson's" (https://magictrickparkinsons.wordpress.com/).
This entry was posted in DBS (Deep Brain Stimulation ), Parkinson's Basics, Posture and tagged . Bookmark the permalink.

1 Response to The Continuing Adventures Of ***Electrode Gal***

  1. Karen VanWyngarden says:

    I’ve been wondering about you. I’ve been cautiously optimistic. Sorry you are still leaning. I guess “gradual” can be G-R-A-D-U-A-L??? Thank you for the update.

    Karen VanWyngarden

    Like

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