Do you smell?

No, I’m not trying to insult you…I mean, do you have a sense of smell?  If you do, you’re 60 or over, and you don’t have Parkinson’s —


Here’s the scoop:

What’s the deal?  Michael J. Fox Foundation is sponsoring a smell survey as part of its funding of Parkinson’s Progression Markers Initiative (PPMI).  The goal of PPMI is to identify biomarker(s) for Parkinson’s.  Right now, there is no objective way to diagnose or measure Parkinson’s.  Finding biomarkers is critical to eventually curing PD.

What’s smell got to do with PD?  People with Parkinson’s tend to lose their sense of smell because of proximity of the olfactory area to  the area of the brain with dopamine damage.

What’s the requirements?   PPMI wants to recruit 10,000 people over the age of 60 who DO NOT have Parkinson’s.

What do I need to do?
1) Fill out the survey online at
2) By completing this form, you agree to allow the PPMI Study Team at IND (that’s who’s carrying out the study) to collect your information, and contact you regarding this study or other related studies.
3) If you qualify, you will receive a study packet within the next several weeks delivered by mail.  This includes a scratch-and-sniff smell test.
4) Based on the results of this test, individuals may be invited to participate in additional assessments.

What if I have questions?
If your questions aren’t answered on the website, call 1-877-525-PPMI (7764) or write

Can I pass this info on to others?
You bet!  Please feel free to forward this link to folks who meet the requirements: over 60 and no PD.

About Laura Kennedy Gould

Author of "The Magic Trick -- Life with Parkinson's
This entry was posted in Parkinson's Research and tagged . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s